Development and Field-testing of the Dementia Carer Assessment of Support Needs Tool (DeCANT)

Trine Holt Clemmensen, Hanne Kaae Kristensen, Henrik Hein Lauridsen, Karen Andersen-Ranberg

Publikation: Konferencebidrag uden forlag/tidsskriftPaper/skriftligt oplægForskningpeer review

Abstract

INTRODUCTION
Informal carers (carers) have an important role in supporting the health and well-being of people with dementia. However, caring for a person with dementia is associated with poor mental, physical and social health, which makes it important to consider the support needs of carers themselves. At present, a robust questionnaire to identify carers’ support needs does not exist. Developing such a questionnaire could facilitate the dialogue with carers and enable supportive interventions for the benefit of both carers and the person cared for.
AIM
The aim of this study is to develop a self-reported questionnaire to assess the support needs of carers of people with dementia and to test it’s face, content and structural validity.
METHODS
A psychometric study design was used. Participants were recruited in primary and secondary health care in Denmark. Items were generated based on interviews and literature review. A person-centred approach using WHO’s International Classification of Functioning, Disability and Health (ICF) was used as a conceptual framework to identify carers’ support needs. Three rounds of pilot-testing were conducted among carers and experts. A large scale field-test using a survey design was conducted to investigate structural validity.
RESULTS
Initially, DeCANT was developed based on an item pool of 63 items. Iterative pilot-testing ensured face- and content validity, and reduced the item pool to 42 items. A total of 19 carers and 8 experts participated in the pilot-testing. Subsequent field-testing among 301 carers resulted in a 25-item version of DeCANT, and Confirmatory Factor Analysis demonstrated a moderate fit to a four-factor model based on the ICF. This confirmed satisfactory structural validity of DeCANT.
CONCLUSION
DeCANT is a 25-item carer-reported questionnaire that can be used to help identify carers’ support needs when caring for a person with dementia to facilitate dialogue with carers in the rehabilitation process.
OriginalsprogEngelsk
Publikationsdatonov. 2021
StatusUdgivet - nov. 2021
Begivenhed31st Alzheimer Europe Conference - Online
Varighed: 29 nov. 20211 dec. 2021

Konference

Konference31st Alzheimer Europe Conference
LokationOnline
Periode29/11/2101/12/21

Emneord

  • Sygdom, sundhedsvidenskab og sygepleje
  • Demens
  • Pårørende
  • Spørgeskemaudvikling
  • behovsvurdering
  • spørgeskemaundersøgelse

Citationsformater