Fra mirakeloplevelse til forsoning: Et hermeneutisk fænomenologisk studie af livet med Parkinsons sygdom efter dyb hjernestimulation

Anita Haahr, Marit Kirkevold, Elisabeth Hall, Karen Østergaard

Publikation: Bidrag til tidsskriftTidsskriftsartikelForskningpeer review

Abstract

Background: Deep Brain Stimulation for Parkinson’s disease is a promising treatment for
patients who can no longer be treated satisfactorily with L-dopa. Deep Brain Stimulation is
known to relieve motor symptoms of Parkinson’s disease and improve quality of life.
Focusing on how patients experience life when treated with Deep Brain Stimulation can
provide essential information on the process patients go through when receiving a
treatment that alters the body and changes the illness trajectory.
Aim: The aim of this study was to explore and describe the experience of living with
Parkinson’s disease when treated with Deep Brain Stimulation.
Design: The study was designed as a longitudinal study and data were gathered through
qualitative in-depth interviews three times during the first year of treatment.
Participants and setting: Nine patients participated in the study. They were included when
they had accepted treatment with Deep Brain Stimulation for Parkinson’s disease.
Methodology: Data collection and data analysis were inspired by the hermeneutic
phenomenological methodology of Van Manen.
Results: The treatment had a major impact on the body. Participants experienced great
bodily changes and went through a process of adjustment in three phases during the first
year of treatment with Deep Brain Stimulation. These stages were; being liberated: a kind
of miracle, changes as a challenge: decline or opportunity and reconciliation: re-defining
life with Parkinson’s disease. The course of the process was unique for each participant, but
dominant was that difficulties during the adjustment of stimulation and medication did
affect the re-defining process.
Conclusion: Patients go through a dramatic process of change following Deep Brain
Stimulation. A changing body affects their entire lifeworld. Some adjust smoothly to
changes while others are affected by loss of control, uncertainty and loss of everyday life as
they knew it. These experiences affect the process of adjusting to life with Deep Brain
Stimulation and re-define life with Parkinson’s disease. It is of significant importance that
health care professionals are aware of these dramatic changes in the patients’ life and offer
support during the adjustment process following Deep Brain Stimulation.
Bidragets oversatte titelFra mirakeloplevelse til forsoning: Et hermeneutisk fænomenologisk studie af livet med Parkinsons sygdom efter dyb hjernestimulation
OriginalsprogEngelsk
TidsskriftInternational Journal of Nursing Studies
Vol/bind47
Sider (fra-til)1228-1236
Antal sider9
ISSN0020-7489
StatusUdgivet - 2010

Emneord

  • interview
  • kvalitativ metode
  • kronisk syge

Citationsformater