TY - JOUR
T1 - Journey of ethics – Conducting collaborative research with people with dementia
AU - Thoft, Diana Schack
AU - Ward, Alison
AU - Youell, Jane
N1 - Publisher Copyright: © The Author(s) 2020.
PY - 2021
Y1 - 2021
N2 - This paper explores some of the ethical considerations of working collaboratively with people with dementia within research based upon the experiences, challenges and learning from three doctoral research studies. Focus is on the research relationship with participants and gatekeepers, the importance of setting and access, the power relations within the research and ways in which people with dementia can be supported to be active and have a voice in research. This sits within an ethical framework of principalist ethics and ethics of care to guide not only how research is planned ethically and with consideration of participants, but also how this can support decisions made in situ. The aim is to share, based upon these three studies, ways of managing and working through some of the ethical consideration to support researchers in their decisions in planning and conducting research with people with dementia as active collaborators.
AB - This paper explores some of the ethical considerations of working collaboratively with people with dementia within research based upon the experiences, challenges and learning from three doctoral research studies. Focus is on the research relationship with participants and gatekeepers, the importance of setting and access, the power relations within the research and ways in which people with dementia can be supported to be active and have a voice in research. This sits within an ethical framework of principalist ethics and ethics of care to guide not only how research is planned ethically and with consideration of participants, but also how this can support decisions made in situ. The aim is to share, based upon these three studies, ways of managing and working through some of the ethical consideration to support researchers in their decisions in planning and conducting research with people with dementia as active collaborators.
UR - http://www.scopus.com/inward/record.url?scp=85084157807&partnerID=8YFLogxK
U2 - 10.1177/1471301220919887
DO - 10.1177/1471301220919887
M3 - Journal article
SN - 1471-3012
VL - 20
SP - 1005
EP - 1024
JO - Dementia
JF - Dementia
IS - 3
ER -