Patient-Reported Outcomes in Adult Survivors with Single-Ventricle Physiology

Dorthe Overgaard; Anne-Marie Voss Schrader; Karen Holst Lisby; Catriona King; Rie F Christensen; H F Jensen; Lars Idorn; L Søndergaard; Philip Moons

doi:10.1159/000333112

Patient-Reported Outcomes in Adult Survivors with Single-Ventricle Physiology

Dorthe Overgaard, Anne-Marie Voss Schrader, Karen Holst Lisby, Catriona King, Rie F Christensen, H F Jensen, Lars Idorn, L Søndergaard, Philip Moons

Publikation: Bidrag til tidsskrift › Tidsskriftsartikel › Forskning › peer review

Abstract

OBJECTIVES: Data on patient-reported outcomes (PROs) in patients with single-ventricle physiology (SVP) are scarce. We sought (1) to describe the perceived health status, quality of life, symptoms of anxiety and depression, and sense of coherence in adult survivors with SVP, (2) to compare PROs across functional classes, and (3) to compare PROs between patients and controls.

METHODS: A case-control study in two adult congenital heart programmes with 62 adult survivors with SVP were matched to 172 healthy controls. A wide range of PROs were measured using validated questionnaires. The treating physician classified patients according to the Ability Index.

RESULTS: Patients with SVP have a good functional status. Patients in Ability Index class I consistently reported the best scores, similar to those of healthy controls. Negative associations were found between functional class and outcomes of perceived health and quality of life. For patients in Ability Index class II and III, PROs were poorer.

CONCLUSIONS: PROs in patients with SVP are generally good.

Originalsprog	Engelsk
Artikelnummer	1
Tidsskrift	Cardiology
Vol/bind	120
Udgave nummer	1
Sider (fra-til)	36-42
Antal sider	7
ISSN	0008-6312
DOI	https://doi.org/10.1159/000333112
Status	Udgivet - dec. 2011

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10.1159/000333112Licens: CC BY

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title = "Patient-Reported Outcomes in Adult Survivors with Single-Ventricle Physiology",

abstract = "Objectives: Data on patient-reported outcomes (PROs) in patients with single-ventricle physiology (SVP) are scarce. We sought (1) to describe the perceived health status, quality of life, symptoms of anxiety and depression, and sense of coherence in adult survivors with SVP, (2) to compare PROs across functional classes, and (3) to compare PROs between patients and controls. Methods: A case-control study in two adult congenital heart programmes with 62 adult survivors with SVP were matched to 172 healthy controls. A wide range of PROs were measured using validated questionnaires. The treating physician classified patients according to the Ability Index. Results: Patients with SVP have a good functional status. Patients in Ability Index class I consistently reported the best scores, similar to those of healthy controls. Negative associations were found between functional class and outcomes of perceived health and quality of life. For patients in Ability Index class II and III, PROs were poorer. Conclusions: PROs in patients with SVP are generally good.",

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AU - Overgaard, Dorthe

AU - Schrader, Anne-Marie Voss

AU - Holst Lisby, Karen

AU - King, Catriona

AU - Christensen, Rie F

AU - Jensen, H F

AU - Idorn, Lars

AU - Søndergaard, L

AU - Moons, Philip

PY - 2011/12

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N2 - Objectives: Data on patient-reported outcomes (PROs) in patients with single-ventricle physiology (SVP) are scarce. We sought (1) to describe the perceived health status, quality of life, symptoms of anxiety and depression, and sense of coherence in adult survivors with SVP, (2) to compare PROs across functional classes, and (3) to compare PROs between patients and controls. Methods: A case-control study in two adult congenital heart programmes with 62 adult survivors with SVP were matched to 172 healthy controls. A wide range of PROs were measured using validated questionnaires. The treating physician classified patients according to the Ability Index. Results: Patients with SVP have a good functional status. Patients in Ability Index class I consistently reported the best scores, similar to those of healthy controls. Negative associations were found between functional class and outcomes of perceived health and quality of life. For patients in Ability Index class II and III, PROs were poorer. Conclusions: PROs in patients with SVP are generally good.

AB - Objectives: Data on patient-reported outcomes (PROs) in patients with single-ventricle physiology (SVP) are scarce. We sought (1) to describe the perceived health status, quality of life, symptoms of anxiety and depression, and sense of coherence in adult survivors with SVP, (2) to compare PROs across functional classes, and (3) to compare PROs between patients and controls. Methods: A case-control study in two adult congenital heart programmes with 62 adult survivors with SVP were matched to 172 healthy controls. A wide range of PROs were measured using validated questionnaires. The treating physician classified patients according to the Ability Index. Results: Patients with SVP have a good functional status. Patients in Ability Index class I consistently reported the best scores, similar to those of healthy controls. Negative associations were found between functional class and outcomes of perceived health and quality of life. For patients in Ability Index class II and III, PROs were poorer. Conclusions: PROs in patients with SVP are generally good.

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Patient-Reported Outcomes in Adult Survivors with Single-Ventricle Physiology

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