To eat is to practice - managing eating problems after head and neck cancer

Marianne Boll Kristensen, Tina Broby Mikkelsen, Anne Marie Beck, Ann-Dorthe Zwisler, Irene Wessel, Karin B. Dieperink

Publikation: Bidrag til tidsskriftTidsskriftsartikelForskningpeer review

Abstract

Purpose
The purpose of this qualitative study was twofold: (1) to explore head and neck cancer (HNC) survivors’ experiences of everyday life with eating problems after cancer treatment and (2) to explore their experiences of participating in a multidisciplinary residential rehabilitation program with a primary focus on physical, psychological, and social aspects of eating problems after treatment.

Methods
Semi-structured focus group interviews were conducted with 40 Danish HNC survivors who participated in a 5-day residential rehabilitation program with follow-up after 3 months. The transcribed interviews were analyzed through qualitative content analysis.

Results
Physical nutrition impact symptoms and unmet needs for support were frequent. Participants experienced a feeling of loss due to impaired eating abilities. Eating had become an obligation or a training situation, and the eating problems challenged the relationship with their relatives when well-meaning encouragement was perceived as a pressure. Social eating was a challenge, and this often led to social withdrawal. The residential program was a safe and supportive environment to practice eating skills, and participants benefited from meeting peers. The program provided participants with knowledge and skills that many of them had been missing during and after treatment.

Conclusions
Eating problems after treatment have substantial effects on the everyday life of HNC survivors. A multidisciplinary residential rehabilitation program may be beneficial to meet their rehabilitation needs.
OriginalsprogEngelsk
TidsskriftJournal of Cancer Survivorship
Vol/bind13
Udgave nummer5
Sider (fra-til)792-803
Antal sider12
ISSN1932-2259
DOI
StatusUdgivet - 2019

Emneord

  • Sundhed, ernæring og livskvalitet

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