Projects per year
Abstract
Objective: To identify multi-sectoral integrated care initiatives for people with Parkinson’s disease and caregivers.
Method: Following the Matrix Method we created a synthesis of literature across methodological approaches. The search was conducted in four databases until June 2022, and included studies focusing on multi-sectoral integrated care initiatives, and how they helped people with Parkinson’s disease and caregivers in everyday living.
Results: The search yielded 5921 articles of which nine were included. We identified four topics describing characteristics of multi-sectoral integrated care initiatives: 1) Peer-support, 2) Personalised care plan, 3) One-off
initiatives limited in time and 4) Presence of a coordinator. And four topics describing how the initiatives helped in everyday living: 1) Confidence, trust and support, 2) Positive changes in health outcomes, 3) Quality of life,
coping skills & psychosocial adjustment, and 4) A strengthened multi-agent collaboration and personalised assistance.
Conclusion: Multi-sectoral integrated care initiatives should be ongoing offers, and include a Parkinson carecoordinator, who can enhance multi-sectoral communication and an individualised approach to information about resources responsive to evolving needs at different disease stages.
Practice implications: Initiatives should be multidisciplinary, multi-sectoral and aimed at people with Parkinson’s disease and caregivers, preferably facilitated by a care-coordinator to promote cross-sectoral communication.
Method: Following the Matrix Method we created a synthesis of literature across methodological approaches. The search was conducted in four databases until June 2022, and included studies focusing on multi-sectoral integrated care initiatives, and how they helped people with Parkinson’s disease and caregivers in everyday living.
Results: The search yielded 5921 articles of which nine were included. We identified four topics describing characteristics of multi-sectoral integrated care initiatives: 1) Peer-support, 2) Personalised care plan, 3) One-off
initiatives limited in time and 4) Presence of a coordinator. And four topics describing how the initiatives helped in everyday living: 1) Confidence, trust and support, 2) Positive changes in health outcomes, 3) Quality of life,
coping skills & psychosocial adjustment, and 4) A strengthened multi-agent collaboration and personalised assistance.
Conclusion: Multi-sectoral integrated care initiatives should be ongoing offers, and include a Parkinson carecoordinator, who can enhance multi-sectoral communication and an individualised approach to information about resources responsive to evolving needs at different disease stages.
Practice implications: Initiatives should be multidisciplinary, multi-sectoral and aimed at people with Parkinson’s disease and caregivers, preferably facilitated by a care-coordinator to promote cross-sectoral communication.
| Original language | English |
|---|---|
| Article number | 107931 |
| Journal | Patient Education and Counseling |
| Volume | 116 |
| Number of pages | 14 |
| ISSN | 0738-3991 |
| DOIs | |
| Publication status | Published - 2023 |
Keywords
- disease, health science and nursing
- parkinson's disease
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Dive into the research topics of 'A Parkinson care-coordinator may make a difference: A scoping review on multi-sectoral integrated care initiatives for people living with Parkinson’s disease and their caregivers'. Together they form a unique fingerprint.Projects
- 1 Finished
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OPTIM PARK: OPTIM-PARK - Optimization of community resources and systems of support to enhance the process of living with Parkinson’s Disease: a multisectoral intervention.
Haahr, A. (Principle researcher), Kruse, N. B. (Co-researcher), Nielsen, T. L. (Co-researcher), Portillo, M. C. (Principle researcher), Kildal, L. B. (Principle researcher), Lopez, L. (Co-researcher), Navarra, V. (Co-researcher), Sørensen, D. (Co-researcher), Laugesen, K. R. (Co-researcher), Færgemand, N. A. (Co-researcher) & Vester, L. B. (Co-researcher)
01/04/19 → 31/12/22
Project: Research