Development and Field-testing of the Dementia Carer Assessment of Support Needs Tool (DeCANT)

Trine Holt Clemmensen, Hanne Kaae Kristensen, Henrik Hein Lauridsen, Karen Andersen-Ranberg

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Informal carers (carers) have an important role in supporting the health and well-being of people with dementia. However, caring for a person with dementia is associated with poor mental, physical and social health, which makes it important to consider the support needs of carers themselves. At present, a robust questionnaire to identify carers’ support needs does not exist. Developing such a questionnaire could facilitate the dialogue with carers and enable supportive interventions for the benefit of both carers and the person cared for.
The aim of this study is to develop a self-reported questionnaire to assess the support needs of carers of people with dementia and to test it’s face, content and structural validity.
A psychometric study design was used. Participants were recruited in primary and secondary health care in Denmark. Items were generated based on interviews and literature review. A person-centred approach using WHO’s International Classification of Functioning, Disability and Health (ICF) was used as a conceptual framework to identify carers’ support needs. Three rounds of pilot-testing were conducted among carers and experts. A large scale field-test using a survey design was conducted to investigate structural validity.
Initially, DeCANT was developed based on an item pool of 63 items. Iterative pilot-testing ensured face- and content validity, and reduced the item pool to 42 items. A total of 19 carers and 8 experts participated in the pilot-testing. Subsequent field-testing among 301 carers resulted in a 25-item version of DeCANT, and Confirmatory Factor Analysis demonstrated a moderate fit to a four-factor model based on the ICF. This confirmed satisfactory structural validity of DeCANT.
DeCANT is a 25-item carer-reported questionnaire that can be used to help identify carers’ support needs when caring for a person with dementia to facilitate dialogue with carers in the rehabilitation process.
Original languageEnglish
Publication dateNov 2021
Publication statusPublished - Nov 2021
Event31st Alzheimer Europe Conference - Online
Duration: 29 Nov 20211 Dec 2021


Conference31st Alzheimer Europe Conference


  • disease, health science and nursing

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