Exploring Health and Social Services in Denmark, Norway, Spain and United Kingdom for the Development of Parkinson's Care Pathways. A Document Analysis.

Tove Lise Nielsen, Naja Benigna Kruse, Anita Haahr, Ellen Gabrielsen Hjelle, Line Kildal Bragstad, Ana Palmar-Santos, Maria Victoria Navarta-Sánchez, Azucena Pedraz-Marcos, Sandra Bartolomeu Pires, Helen C Roberts, Mari Carmen Portillo

Research output: Contribution to journalJournal articleResearchpeer-review

Abstract

People with Parkinson’s disease (PD) may find it difficult to identify and access the wide number of services they need and are entitled to along their complex PD journey. As part of the project OPTIM-PARK – Optimization of community resources and systems of support to enhance the process of living with Parkinson’s Disease, a document analysis was developed to create overviews of existing resources and systems of support in Denmark, Norway, Spain and the United Kingdom. Documents on community resources, policies, guidelines and professional recommendations were the main sources of information. They were sought systematically at official websites of the public sector (national and regional levels) and at websites of non-governmental organisations and scientific societies; searches were performed in October 2020 and updated September 2021. A higher-level cross-national content analysis integrated all the country-specific information. Data- and concept-driven coding frames were developed; trial coding and peer review strengthened face validity and reliability. The analysis led to overviews of: 1) Key aims at patient and societal levels. 2) Key elements in form of professional approaches. 3) Community resources. 4) Legally anchored services. In general, clear descriptions of how to implement care pathways and tools to facilitate delivery were missing in the included documents, and pathways and guidelines did not include referral to general social support, social security support or labour and employment support. The results shed light on the complex support systems and resources and can inspire the planning of more comprehensive care pathways for people with PD and other long-term conditions.
Translated title of the contributionUndersøgelse af social- og sundhedsydelser i Danmark, Norge, Spanien og Storbrittanien til udvikling af en Parkinson's Caare Pathway. En dokumentanalyse
Original languageEnglish
JournalHealth and Social Care in the Community
Volume30
Issue number6
Pages (from-to)e3507-e3518
Number of pages12
ISSN0966-0410
DOIs
Publication statusPublished - 2022

Keywords

  • health, nutrition and quality of life
  • social work and social conditions

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