Abstract
Abstract
Background: Advanced cancer often causes psychosocial and physical consequences that in turn affect quality of life. Engagement and performance of occupations may contribute with experiencing better quality of life (QoL) for people with advanced cancer. Research suggest connections between quality of life, occupations and joy. Yet, knowledge of which specific occupations contribute to joy for people with advanced cancer is sparse.
Aim: To describe and explore which occupations contribute to joy for people with advanced cancer and what appears when they speak about these occupations.
Methods: This study is based on data from 111 participants from the Danish ‘Activity, Cancer and Quality of Life at Home Project’. Content analysis was applied for 111 interviews and 10 participant-observations.
Results: Occupations contributing to joy were identified and categorised into doing free time occupations, being together, and doing chores. Three different approaches appeared when participants spoke about occupations contributing to joy: finding solutions to maintain occupations creating joy, having an ‘either or’ approach to occupations creating joy, and hoping to resume occupations creating joy.
Conclusion: This study is one of the first to examine a substantial amount of empirical data on occupations contributing to joy for people with advanced cancer. The two largest categories were doing free time occupations and being together. Different approaches to occupations contributing to joy appeared when participants spoke about these occupations. The different approaches resolved whether the participants maintained or deselected occupations contributing to joy.
Background: Advanced cancer often causes psychosocial and physical consequences that in turn affect quality of life. Engagement and performance of occupations may contribute with experiencing better quality of life (QoL) for people with advanced cancer. Research suggest connections between quality of life, occupations and joy. Yet, knowledge of which specific occupations contribute to joy for people with advanced cancer is sparse.
Aim: To describe and explore which occupations contribute to joy for people with advanced cancer and what appears when they speak about these occupations.
Methods: This study is based on data from 111 participants from the Danish ‘Activity, Cancer and Quality of Life at Home Project’. Content analysis was applied for 111 interviews and 10 participant-observations.
Results: Occupations contributing to joy were identified and categorised into doing free time occupations, being together, and doing chores. Three different approaches appeared when participants spoke about occupations contributing to joy: finding solutions to maintain occupations creating joy, having an ‘either or’ approach to occupations creating joy, and hoping to resume occupations creating joy.
Conclusion: This study is one of the first to examine a substantial amount of empirical data on occupations contributing to joy for people with advanced cancer. The two largest categories were doing free time occupations and being together. Different approaches to occupations contributing to joy appeared when participants spoke about these occupations. The different approaches resolved whether the participants maintained or deselected occupations contributing to joy.
| Translated title of the contribution | Glædesskabende aktiviteter for mennesker med fremtræden kræft - et kvalitativt deskriptivt studie |
|---|---|
| Original language | English |
| Publication date | 2020 |
| Publication status | Published - 2020 |
| Event | 11th EAPC World Research Congress 2020: European Association For Palliative Care - Interactive online sessions - Online Duration: 7 Oct 2020 → 9 Oct 2020 https://eapcresearchcongress2020.eu/ |
Conference
| Conference | 11th EAPC World Research Congress 2020 |
|---|---|
| Location | Online |
| Period | 07/10/20 → 09/10/20 |
| Internet address |