Parental experiences, coping and the impact of Family Burn Camp after paediatric burn injury: A qualitative study

Background: Paediatric burn injuries constitute a transformative event for parents, shaping their lives in profound ways. This study explores parental experiences, coping mechanisms, and the impact of Family Burn Camp in the aftermath of paediatric burn injuries. Methods: A qualitative study was conducted in 2019 comprising two focus group interviews with 15 parents at the Family Burn Camp in Stavern, Norway. Data was analysed using systematic text condensation. Results: Four categories emerged outlining parental experiences and coping strategies: 1) From acute chaos to a scarred future; 2) The paradox of being a helper and being the one who needs help; 3) Being isolated as parents of burnt children and 4) Coping through dialogue, empowerment and Family Burn Camp. Balancing the role of caregiver while seeking support, parents often experienced emotional breakdown after completion of the child's wound treatment, leading to loss of work function. Coping strategies emerged through fostering the child's self-esteem, with Family Burn Camp emerging as a beacon, deemed “worth more than a thousand therapy sessions”. Conclusions: Our findings suggest that increased psychological and economic support are needed during and after the child's physical recovery. Family Burn Camp is a crucial element in the rehabilitation process for the whole family.