TY - ABST
T1 - Rehabilitation and Palliation Alongside in the Care of Severe COPD
AU - Noe, Bodil Bjoernshave
AU - Smorawski, Gitte Andsager
AU - Husted, Marianne Reventlov
AU - Hansen, Lisbet Vestergaard
PY - 2021
Y1 - 2021
N2 - Background Studies have shown that Palliative Care (PC) in Chronic Obstructive Pulmonary Disease (COPD) improves patients` symptoms and quality of life. However, there seems to be a lack of insight about what PC for COPD patients currently means and what it comprises of in Denmark. The Danish Register of COPD (drKOL), uses 13 indicators to assess the quality of COPD care. None of them concerns PC. The main objective is to clarify what the palliative COPD effort consist of in order to identify cross‐sectional challenges and success in current practice from the perspective of patients, relatives and the multi‐professional staff. Methods This qualitative interview study uses inductive content analysis. A total of 12 interviews are conducted; individual semi‐structured interviews with six patients living with severe COPD, and three relatives of COPD patients. Three focus‐group interviews with the multidisciplinary staff from the health and social sector as well as hospital priest. This abstract refers to the preliminary findings as the analysis of the interviews is ongoing. The analysis will be accomplished before the RIWC2020.Findings Our preliminary findings suggest that the COPD patients receive various support from the multidisciplinary and cross‐sectorial health care system and social system. E.g. home care, emergency help, medical treatment, rehabilitative training sessions, exacerbation support and equipment. Although, the findings suggest, that the system may fail to meet the patients` individual needs and desires. Of specific interest, the findings highlight, that the patients, relatives as well as professionals believe, that rehabilitation and palliation is two sides of the same coin. Rehabilitation in terms of training of psychosocial support seems to represent meaning and hope whereas palliation seems difficult to grasp and to express what means.
AB - Background Studies have shown that Palliative Care (PC) in Chronic Obstructive Pulmonary Disease (COPD) improves patients` symptoms and quality of life. However, there seems to be a lack of insight about what PC for COPD patients currently means and what it comprises of in Denmark. The Danish Register of COPD (drKOL), uses 13 indicators to assess the quality of COPD care. None of them concerns PC. The main objective is to clarify what the palliative COPD effort consist of in order to identify cross‐sectional challenges and success in current practice from the perspective of patients, relatives and the multi‐professional staff. Methods This qualitative interview study uses inductive content analysis. A total of 12 interviews are conducted; individual semi‐structured interviews with six patients living with severe COPD, and three relatives of COPD patients. Three focus‐group interviews with the multidisciplinary staff from the health and social sector as well as hospital priest. This abstract refers to the preliminary findings as the analysis of the interviews is ongoing. The analysis will be accomplished before the RIWC2020.Findings Our preliminary findings suggest that the COPD patients receive various support from the multidisciplinary and cross‐sectorial health care system and social system. E.g. home care, emergency help, medical treatment, rehabilitative training sessions, exacerbation support and equipment. Although, the findings suggest, that the system may fail to meet the patients` individual needs and desires. Of specific interest, the findings highlight, that the patients, relatives as well as professionals believe, that rehabilitation and palliation is two sides of the same coin. Rehabilitation in terms of training of psychosocial support seems to represent meaning and hope whereas palliation seems difficult to grasp and to express what means.
KW - disease, health science and nursing
UR - https://az659834.vo.msecnd.net/eventsairwesteuprod/production-kongresk-public/947c9663dab9477e9df293c53cf6b3f8
M3 - Abstract
SP - 27
T2 - Rehabilitation World Congress:
Y2 - 7 September 2021 through 9 September 2021
ER -